At last some good news. The occupational therapists have completed the smart testing process (many many thanks to Kerry) and has proposed that Adam is transferred for rehab to the Royal Hospital for Neuro Disability in Putney, South London. (www.rhn.org.uk) . The consultants reports and registrar’s reports have been compiled and sent off. The RHN have assessed all of this and have agreed to accept Adam as a patient.
The RHN is outside the Leeds General Infirmary area and is an independent hospital. They are writing to Leeds saying they will accept Adam (in fact this may well have already taken place). The next step is for the Leeds trust to agree to the funding, and we are awaiting information regarding the Board’s next meeting, and hope that this will be before the end of the year.
Time scales are not known yet, but we hope that this can take place quickly. LGI is unable to provide the specialist level of care needed and for Adam’s sake we c
annot afford to wait any longer. We will keep the pressure on to ensure that the treatment he does receive is at least adequate for his condition.
Adele and I are obviously sad that he will be so far away, but we believe, and so do the occupational therapists, that this gives Adam the best chance of recovery and regaining quality of life. We will make it work knowing that it is for the best, secure in the knowledge that his needs and recovery will be properly taken care of at a specialist centre. We will still visit regularly, but will not be able to spend as much time with him as we are doing at present,
If you want to know more about RHN check out the web site and the recent Panorama programme.
Thanks to all for the messages of support and offers of help. For now we are monitoring the situation closely. If there are any delays, or if for some reason the funding is turned down we will let you all know immediately so that we can take action. Hopefully, this will not be necessary.
