Tuesday, 27 November 2012

NHS frustrations!


Andrew Pickles
The other night I had an anxiety dream. I had to drive someone (I think I know who it was) to the airport, and we had half an hour. The signposts were misleading and we finished up on the wrong road. We could see the airport so doubled back and tried again, reading the signs carefully. Same result tried again, wrong road, took the alternative road and finished up getting lost, tried a totally different route, which passed the airport but not into it…and time was ticking away….
Adam is still trapped in limbo land at the hospital, rehabilitation cant take him because he has a tracheotomy, the hospital ward is not geared up to provide full rehab, proposals for alternative centres are going through committees and panels and nothing happens. We have family meetings, nothing happens, we have an
other meeting, but staff have been moved round and nothing happens, we have another meeting and only one person turns up that we have not met before. We have only spoken to his consultant once for 10 minutes. He has a new registrar and we have never spoken to her…..and time is ticking away.
The complaints department, contacted over three weeks ago has sent a letter and a form for Adam to sign, nothing else.
One shining light is Adam’s occupational therapist who is doing her very best to provide as much support as she can, but it is still short of what he needs.
So we have escalated to senior level and director level in the NHS trust in the hope that someone with the ability to change the situation will listen to us.
Like ·  ·  · Yesterday at 08:59
  • Martin Gerard Walsh Sounds bloody awful - never easy fighting institutional inertia at the best of times! Keep pushing and don't take any prisoners - this is a dip before the situation starts to improve! It's no accident that Ad has balls of steel and the heart of a lion - stay strong, keep fighting and take care of yourselves xx!
    Yesterday at 09:09 via mobile · Like · 2
  • Sarah Norwell Hear hear Martin! It must be do incredibly frustrating for you both. But, as always, you are looking towards the positives and that is inspirational. There are people all over the world thinking about you, Adele, and of course Adam. Keep fighting, you will get there xx
    Yesterday at 09:22 via mobile · Like · 4
  • Neil Clappison Bloody hell Andrew, let's use this group again, give us their name & email and we'll all write. Stay strong, I wish I were there to help you at the moment.
    Yesterday at 09:36 via mobile · Like · 8
  • Tracey Gudonis-Page Yes as Neil says, maybe we need to use a bit of people power again and get everyone writing in to the relevant people? Thinking of you all x
    22 hours ago via mobile · Like · 1
  • Maria Leisha Give us the details... W made a difference before. We can do it again! <3
    21 hours ago · Like · 1
  • Judith Mitchell I would love to bombard them with emails and fire to burn their red tape and bottoms!! Please do let us have names and addresses. Disgusting and archaic. Thinking of you. There are many voices in the wings to make a very load noise. x
  • Alison Butterworth Agreed with Judith above!
  • Barbara Hunt my thoughts and prayers are with you all , and in the hope that everything gets sorted out by the powers that be very quickly ! stay strong you are doing a fabulous job for adam and you have so many people who love adam willing you on xxx
  • Thomas Rawlings All the best luck and wishes with the continuing struggle x
  • Caroline Delhommeau As you can see we are all behind you! Positive energies to Leeds. Yours and Adeles determination and love for Adam will get you over yet another frustrating hurdle. Let us know wheat we can do and who we should contact to offer our disgust at the situation x
  • Chandy Chima let's do it
  • Jonathan Ogden We're all here and happy to help.
  • Danielle Nicholls How awful - what happened to patient care being at the heart of the NHS? Evidently some bureaucrat forgot to pass that memo to the other bureaucrats whose job is to talk down at the nurses, give hell to the cleaners and make coffee for the consultants! Good luck Andrew it is never easy dealing with people who only hear what they want to. X
  • Megan East How frustrating, and totally mind boggling, what about alternative medicine, didn't you mention the peole that can help bring him out of the coma, surely he has been in a coma long enough now that they can help, I remember you talking about this group a few months back or whilst you were in Thailand.
  • Cafrin Hart Le What a frustrating situation. As Neil says, let's use this group and harness the people power. Please do let us know if there is anything we can do. Love tou you all, as ever. xx
    7 hours ago · Like · 1
  • Andrew Pickles Thanks for all the support. I wanted everyone to know the situation before asking for your help. One of the letters has been sent to an official at LGI who has been highly recommended to us from a few sources. I would like to give a few days for a response before applying any further pressure.
  • Andrew Pickles Hi Megan East. We are also chasing this. We have requested the use of this medication, but at the moment, this too has vanished into a black hole.
  • Bob Charlton So frustrating
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