Great to hear how positive the move has been for Adam......could I ask how little Ben is getting on?
Hi everyone! I was an assistant teacher (gap) at Regents and knew Adam there!
I have a favor to ask of you guys.
Over Christmas vacations, my deaf grandmother passed away. She had been fighting a long battle with cancer, and we were happy to see her finally get some peace. We know she has gone to a better place. My (also deaf and mute) grandfather has been trying to live alone for the past two months, but it has been hard. He fell badly last week and could not get up. He was ecstatic when we offered to let him move in with us. We would like to be able to renovate the downstairs office into a nice, big room for him. Please click on "J'aime" to support us!
http://estrie.rougefm.ca/Showcase/reno-deco/ View.aspx?ID=371435#comments We have just returned home after spending three days with Adam at Putney. We have now met all the staff, and had a meeting with Dr. Ali who is the Dr. In charge of Adam’s case. We discussed Adam’s treatment and the potential use of medication. What a difference it makes when people talk to you and explain. We are now totally convinced that this is the right place for Adam to be.
Amazing attention being given to the chair to provide the best support and muscle tone, diet (he has put on a bit of weight) and therapy and the way forward. Basically they are working very hard to establish an accurate base line before moving him forward.
He is now sat out in the ward in his chair for around four hours a day. He is not being kept in an isolation room. When in the chair he is in a sort of lounge area with other patients immediately in front of the Nurse’s station, so he can be seen at all times and when in his room he has a nurse with him at all times.
He no longer has the nebuliser connected and because of the close nursing attention does not need heart and respiration monitors. His cough and chest secretions have reduced dramatically and they hope to have the tracheotomy out soon (maybe within two weeks)
When we arrived he was sat in his chair (asleep) but woke up after about an hour. The amount of work they are doing with hime tires him very quickly. Nice responses when we gave him his guitar on Sunday and we noticed that the therapists were using this with him. There was lots of movement, and smiles and we believe better and more aware responses. A brief chat with physio on Tuesday said that they had got some good responses out of him. He is going for music therapy on Thursday.
We could add a lot more detail, but these are early, but very positive days.Spent some time with Adam this afternoon. It is good that hey have him sat in a chair and he was relaxed. i was unable to tell if he was awake, he wan't responding to any of my requests for blinks etc (mind you I can go on a bit...), nevertheless it was really good to see him. I told him how much everyone loves him and wishes him well. x x x
Phoned the hospital yesterday. Adam was restless when he arrived at Putney, far more so than he has been for a long time. The Tracheotomy was obviously irritating him and on Friday morning he managed to grab hold of it and pull it out. So he has a full time nurse sat with him at the moment!
However, he is settling down. All the specialists that will be working with him have now seen him, they are hoping that he will be out of bed in a chair today and will be sat out each day from now on.
They estimate that it will take about two weeks to carry out the assessment and set the goals and treatment, but as we know more we will let you know.Just spoken to the hospital and Adam is doing well. we'll be seeing him this weekend so will have more news for you all next week. Thanks for all your good wishes, I am well again now. We are missing Adam lots, it feels strange not seeing him each day but on the positive side it helps us get our own lives back on track. Love to all you lovely people out there Adele xx
This sums up Adam, and sorry about the bad camera work ! ..... Myself and Susy had just started our round the world trip and were staying with Adam and Fann in Thailand for a few weeks. One time we decided on a guys day out ....which included this and was a joy to watch. All 3 of us (Me, Adam and Tom) had been out all day starting at an ATP tennis match in a posh hotel sports arena, By night Adam and Tom did their thing as we passed by a bar a bit later in the night and they joined/took over the band ! Good times and great memories, wake up soon mate, we all need to see this again !
http://www.youtube.com/watch?v=1hYhTQWGjc4&list=FLkLF6 gVU4I-IrCAsoS9fkfQ We are back home. In the early hours of this morning Adele was very ill. I suspect it is norovirus. So we set off home early in the afternoon.
Adam, as always is managing to express his personality. Already the nurses are getting to know the person behind the coma. It happened in Leeds and already it is happening in Putney.
We are both vary happy with the attention and care that he is getting. We now have to step back a little and let them get on with their work. As soon as we have some news we will let you know.I visited Adam yesterday. He was in a wheelchair in the day room (the nurse - who stayed with him all the time - said they get him sitting up every day). He looked so much more relaxed and at ease than last time I saw him in Leeds. As Cafrin Hart Le said, he seems to be in good hands there. The Putney hospital is clean and light with a positive atmosphere about the place. I think it is the ideal place for Adam at the moment and I look forward to seeing him progress.
No comments:
Post a Comment